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Tag: adolescentchronicfatigue

Updates Since Returning from Mayo PPRC

Updates Since Returning from Mayo PPRC

  AFTER THIS UPDATE SECTION, PLEASE START TO READ THE BLOG POSTS FROM THE BOTTOM UP – FIRST BLOG IS CALLED “GROUND ZERO – AUGUST 2014”.  Like other blogs, the most recent entries are on top.  My story starts at the bottom. ————————————————————————————————————————————– UPDATE – SUMMER 2018 – It has been 4 years since I got sick with POTS and what a difference 4 years has made!  I just finished up my junior year in high school and I had…

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Going Home Overview, Staying in School, Bad Day Plan & Relapse Prevention

Going Home Overview, Staying in School, Bad Day Plan & Relapse Prevention

All kids graduating from the PPRC need to continue to focus on “how well am I functioning?” (instead of “how do I feel?”).  A great side effect of functioning better is a decrease of pain and/or symptoms.  The PPRC has a 70-80% success rate (meaning fully functional), 6 months out of the program.  What are the pitfalls? (1) patients stop doing the program when they start feeling better & (2) the parents don’t do their part to help keep the kids on the…

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