An online survey conducted by Dysautonomia International in Dec 2013 reveals stunning statistics about patients who spend years trying to figure out what’s wrong and trying to learn why they can no longer function “normally”. Of the 700 respondents with POTS:
–Average time to diagnosis (from first symptoms): 6 years (for over 20%, it was 10 years)
–Percent who received a psychological diagnosis before their POTS diagnosis: 83%
–Percent diagnosed by the pediatrician or primary care doc: 12%
–Percent who saw more than 10 different doctors before diagnosis: 27% (8% say more than 20 doctors).
Above statistics from: http://www.huffingtonpost.com/deborah-j-cornwall/invisible-illness-keeping_b_5567132.html